Kelly A. Baker EveryLife Foundation for Rare Diseases

An Arkansas native, Kelly Baker is a a disability/rare disease advocate and public speaker. Kelly has chronic intestinal pseudo-obstruction (CIPO), as well as Ehlers-Danlos syndrome and autonomic neuropathy. She has been on home parenteral nutrition (HPN) for a total of 3 ½ years and tube feeding for five years. Kelly is currently a college student at Arkansas State University—Mountain Home studying to be a registered nurse. She hopes to work in research and as a clinical educator in the future to help patients on enteral and parenteral nutrition. Kelly is a Young Adult Rare Representative (YARR) of the EveryLife Foundation for Rare Diseases and a volunteer ambassador for the Oley Foundation. She can be contacted at kellysgotguts@gmail.com.